Yes, You Can Reconcile The Wide Sharing Of Personal Medical Research Data With Greater Participant Control

Fri, 1 Apr 2016 12:23:11 +1100

Andrew Pam <xanni [at] glasswings.com.au>

Andrew Pam
<https://www.techdirt.com/articles/20160304/10122633808/yes-you-can-reconcile-wide-sharing-personal-medical-research-data-with-greater-participant-control.shtml>

"Although the benefits of sharing big datasets are well-known, so are
the privacy issues that can arise as a result. The tension between a
desire to share information widely and the need to respect the wishes of
those to whom it refers is probably most acute in the medical world."

This is a great example of "informed consent".

Share and enjoy,
                *** Xanni ***
--
mailto:xanni@xanadu.net                   Andrew Pam
http://www.xanadu.com.au/                 Chief Scientist, Xanadu
http://www.glasswings.com.au/             Partner, Glass Wings
http://www.sericyb.com.au/                Manager, Serious Cybernetics

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