"I’d been sick for at least eight months when I finally did enough internet
research to diagnose myself with long COVID. It felt simultaneously like a
relief and falling into a deep, dark hole when the long COVID clinic at Sheba
Tel-HaShomer Medical Centre confirmed the diagnosis. Finally, there was a name
for what I was going through, finally an explanation for this collection of
strange and inexplicable symptoms, why my brain didn’t seem to work the right
way, and why it couldn’t form words into a sentence like it used to.
But also, there was suddenly an understanding about the length of the road of
my recovery, coming face to face with a chronic disease that, while fairly
widespread, is not well-understood.
I’ve been sick for almost a year, and some days I feel like I’m starting –
slowly – to emerge from the shadows and back into my life. Now I’m taking stock
of everything I’ve missed over the past year and the way certain aspects of my
life have crumbled as I’ve been invested in daily survival and let everything
else fall away. Now that I’m starting to feel better, I’m sharing a few words
in the hope it might help people support others going through this ordeal.
Here are a few questions people asked me while I was sick along with some
suggestions for better ways to show you care."
Via Violet Blue’s Pandemic Roundup
: September 7, 2023
*** Xanni ***
Chief Scientist, Xanadu
Partner, Glass Wings
Manager, Serious Cybernetics